Retinoblastoma Treatment at One Rb World
Prompt, appropriate medical care is vital for all children with retinoblastoma. A range of treatments are used depending on extent of the cancer, its risk of spread, and the child’s health and...
View ArticleDestigmatizing Vision Loss Within the Retinoblastoma Community
Vision loss is a major part of the retinoblastoma experience, but rarely discussed in depth within our community. Sassy Outwater-Wright explores the trauma of vision loss, the experience of living with...
View ArticleInvesting in Hope: The Quest to Fund Retinoblastoma Research
Research funding is vital to improve retinoblastoma early diagnosis, life and sight-saving treatment, family support, survivor care, and cancer prevention. But securing the funds for rare cancer...
View ArticleFun in the So Cal Sun: 6th Annual Southern California Retinoblastoma Family Day
Childhood eye cancer and its lifelong impacts can be a lonely, overwhelming experience. Connecting with others who understand is a healing balm for many. On November 4th, nearly 100 young patients,...
View ArticleLight Up for Rare and Share Your Retinoblastoma Colours on February 29!
Retinoblastoma is a rare cancer, affecting around 1 in 16,000 live births. Rarity poses challenges from pre-diagnosis through treatment and lifelong care – Rare Disease Day matters to our community!...
View ArticleFrom One Child to One Rb World: Our Foundation Story
Daisy’s Eye Cancer Fund (now World Eye Cancer Hope) evolved from the generosity of one family sharing hope with another at opposite ends of the earth, creating light within the darkness that...
View ArticleBeyond Retinoblastoma: Celebrating Cancer Survivorship; Advocating Lifelong Care
At seventeen months old, Marissa Gonzalez was diagnosed with bilateral retinoblastoma – the first turning point in her lifelong journey with this cancer syndrome. Today, as President of WE C Hope USA,...
View ArticleMile High Moments at the Denver Retinoblastoma Family Weekend
Fifty retinoblastoma patients, survivors, and their family members joined World Eye Cancer Hope USA in February for three days of connection and fun in Colorado’s capital. Marissa D. Gonzalez,...
View ArticleA Glint or a Squint Could Be Your Hint: Knowledge is Key to Retinoblastoma...
Critical clues to a child’s eye cancer hide in plain sight. Parent and physician knowledge, and ability to spot these silent signs are vital to early detection, swift referral, and prompt diagnosis....
View ArticleBetween Shadow and Light: Young Lives in Jeopardy from Retinoblastoma
Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories,...
View ArticleGut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye...
Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for...
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